Annoucing the launch of helppain.org

The Chronic Pain Policy Coalition is delighted to announce the launch of its new public awareness website.  This webpage has been put together to help people with persistent (Chronic Pain) manage as well as providing information and links to resources.

The webpage also informs people living with pain of the range of treatment options available and how they can begin a campaign in their local area.

Visit helppain.org to find out more

 

New Chronic Pain Website

Healthcare Improvement Scotland have developed a new chronic pain website for use by patients and healthcare professionals which brings together a range of quality assured information and resources in one place:-

http://chronicpainscotland.org/

 

Financial Leadership Award

AWARD WINNER

We are delighted to announce that our Deputy Director, Sonia Cottom won the Sayer Vincent Financial Leadership Award for “Improving the Way You Work” category.

sonia-leadership-award-imag

Deputy Director – Sonia Cottom

This is an absolute honour for the Association to celebrate outstanding financial leadership and demonstrating the significant impact that has been made for the Association, its beneficiaries and those whom they work with, particularly within the NHS.

The unique referral, monitoring and reporting processes that have been established ensures that our service delivery meets the needs of the various Health Boards whom we work with. We look where we can provide added value to assist Boards achieve their waiting time initiatives as
well as looking for opportunities for service improvement. Not only do all these processes save the NHS money and create added value, they also save valuable staff administration resource which can be used in other areas.

 

BBC News reports Alex Neil promising Chronic Pain patients better care

Patients with chronic pain in Scotland will receive improved specialist care, Health Secretary Alex Neil has pledged.

Click the video below to view the BBC news video clip.

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Self-Management check list

Self -Management check-list

 

Self Management is something that many people get confused about.

With this in mind, I have written a very simple checklist of the sorts of things that you need to understand and do.

 

Some things are practical like relaxation and pacing, but other things have a lot more to do with thoughts and feelings. In fact, thoughts and feelings have a lot of relevance to practical activities. This is because the way we think has a lot to do with the way we behave and what we allow ourselves top do or not do.

 

As an exercise it would be good to tick off the things that you already do and maybe circle a few new things that you would like to achieve.

 

You may also find that this list helps your family and friends to understand what it is that you’re actually doing and trying to do at Pain Association meetings. It might also help them to help you. You might also like to add to the list.

 

It’s also important to bear in mind that many of the things on this list are easy to say but difficult to do, but this doesn’t mean that you cant do them, its just that they take effort and might require a change of thinking. The key thing is to engage in the process and start doing something now.

 

Checklist

 

  • The ability to pace your activities so that you stay within your capabilities and avoid cycling between boom-bust

 

  • An acknowledgement that things have changed and that you need to adapt

 

  • A relaxation technique that works and that you practise daily

 

  • A proper understanding of your condition

 

  • A way of explaining your condition simply

 

  • An understanding of what your pain means

 

  • Understanding of how stress impacts on your health

 

  • Understanding of how activities affect you so that you can plan

 

  • A way of spotting that you’re doing too much (a thought or a sensation)

 

  • The ability to stop if you know you need to

 

  • A flare up plan

 

  • Things that you know will help pain

 

  • A positive way of dealing with others

 

  • A ‘normal’ way of talking about your health without putting others off and upsetting you eg I’m ok thanks, but my back is giving me problems right now

 

  • The attitudes:
  • What choice do I have?
  • Does the cost justify the benefit?
  • What can I actually do now to improve things, even a little?

 

  • A focus on what you can do rather than what you can’t

 

  • A person to talk honestly to

 

  • A structure for days with work rest and play

 

  • Always something to look forward to

 

  • A sign of stress building up that you can spot (like getting claustrophobic or snappy)

 

  • Baselines (time/distance) for key activities like:
  • Walking
  • Housework
  • Sitting
  • Standing

 

  • Activity to fully engage thinking

 

  • Endorphin producing activities

 

  • Activities that you can lose yourself in

 

  • Music to change mood in the right direction

 

  • Protected time for switching off

 

  • Plan for when you don’t sleep

 

  • A way of keeping fit (safely)

 

  • Stretches and exercises based on professional advice

 

  • Write things down when you’re worried

 

  • Write things down when you go to the doctor

 

  • A way of gently improving fitness or mobility (see baselines)

 

  • A deal with yourself about your condition eg if I don’t pace I’ll get worse

 

  • Someone or some place where people will believe you

 

  • A way of saying no thanks

 

  • A way of saying yes please

 

  • The ability to prioritise

 

  • Awareness of negative thoughts that affect your mood or behaviour

 

  • A way of dealing with negative thinking so that it affects you less

 

  • Not putting your needs last

 

  • Being kind to yourself

UK Care Integration Awards Finalist

UK Care Integration Awards Finalist

 

We are delighted to report our achievement of reaching the finals of the UK Care Integration Awards, of which the presentations are to be made in May 2013 and winners announced in July 2013.  These awards recognise and reward excellence in collaborative healthcare working.  They celebrate excellence in an area which arguably presents the greatest challenge to modern healthcare recognising those organisations and individuals who are at the forefront of offering integrated care to ensure that local health and wellbeing needs are better understood and addressed.

PLEASE TELL US WHAT YOU THINK

As part of the Government’s plan to improve Chronic Pain Services across Scotland a national website is being expanded and developed.

http://www.knowledge.scot.nhs.uk/pain/patient’s-page.aspx

 

The aim to provide a One Stop Shop for anyone who wishes to find out more about Chronic Pain resources. 

We want to know what you would like to see included in the Self Management section of the site. Links will be included to already established groups. What did you find helpful / or would have found helpful when taking your first steps to finding out more about Chronic Pain?

 

All comments appreciated via Pain Association Scotland or to nturvill@nhs.net    Thank you.

News from Trusts

We have recently completed an intensive course in Oban.  This was possible through the kind donation from Crerar Hotels Trust along with being able to use the Oban Bay Hotel and Spa to host the course.  This is the first time we ran an intensive course using the opportunity for people to self-refer.

Completion of Intensive Self-Management Course held at the Oban Hotel and Spa

Completion of Intensive Self-Management Course held at the Oban Hotel and Spa

Celebration

Pictures of “Falkirk Intensive Self-Management course participants” after completion of course.

Falkirk Intensive Self-Management course participants complete course

Poem

“Go and Take a Peek”
By Brian McAlorum

The truth is always there, you know
Though sometimes hard to seek
Often hidden amidst the cares in time
Should we go a take a peek?

Under dreadul pain and suffering
The truth waits to behold
Life’s mysterious yet authentic story

Just waiting to unfold

 So lift the lid, I say to you

Because in this life, you will not die

But awake and come to life my friends

Not forever dwell in pain and endless cry

It’s time I pardoned the world this day

And forgave her the buden of my shriek

So, I’ll lift the lid and step right in

and

Go and Take a Peek

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